Manchester news Desperate plea for brave teen forced to live in excruciating pain Manchester united news

PremierLeague-News.Com - Before his 14th birthday, Rhys became overwhelmed, telling his mum he wished "a butterfly would come and take him away"

Manchester news Desperate plea for brave teen forced to live in excruciating pain Manchester united news

PremierLeague-News.Com - Before his 14th birthday, Rhys became overwhelmed, telling his mum he wished "a butterfly would come and take him away"

Manchester news  Desperate plea for brave teen forced to live in excruciating pain Manchester united news
21 February 2021 - 07:45

PremierLeague-News.Com - Breaking Sport Transfer News ! The bath is one of the only places brave Rhys Williams is ever able to stretch out his limbs and properly relax. He is confined to a wheelchair and barely able to move most of the time. And when the 15-year-old tries to sleep, he has to lie on his back with his legs in the air Rhys  has a rare life-limiting skin condition, epidermolysis bullosa, which causes painful blisters and sores across his body. It has left the Bolton youngster unable to hold anything after his fingers fused together. Now family and friends are appealing for help to give him life-changing relief from the pain. Mum Tanya, 37, is desperate to help her son find relief from the excruciating pain. She said: “He can’t walk, he can’t move, so he’s fixed in the wheelchair position most of the time – even when he’s laying down he’s like a turtle on his back with his legs in the air, and he has to sleep like that too. Brave Rhys smiles with his family (Image: GoFundMe) “But when he’s in the bath he’s able to relax his muscles and let his legs straighten out, it helps loosen the tightness around the back of his knees and his arms. “It’s the only time he gets any relief, but a bath once a week isn’t making a difference at all, once he’s had a bath he’s back sat down in that position. “We looked into hydrotherapy but none of the local pools would take him because they’d have to drain it afterwards because of his skin conditions. “Getting him into the water a few times a week to get his arms and legs moving and get him comfortable would make such a difference.” Rhys Williams, 15, at his home in Bolton (Image: GoFundMe) Before his 14th birthday, Rhys became overwhelmed with his condition, telling his mum he wished "a butterfly would come and take him away". He told his mum what he wanted to happen at his funeral, planning the commemoration to make sure it was the perfect representation of his life. In a bid to improve Rhys’ quality of life, the family were gifted a hot tub and want to set it up in the back garden to give him a place to relax and relieve some of the pain of his condition. Unfortunately, the family can’t set it up outside, as Rhys can develop painful blisters in his eyes from the sun.

News source = PremierLeague-News.Com

. Ms Williams added: “Keely’s been a God send doing the fundraising, she’s running raffles and working so hard to get Rhys a summerhouse. “She’s our angel, she’s made our life that little bit easier – we don’t have to try and fight to get him into a pool now. “Hopefully we can just get out in our back garden soon and give Rhys the relief he deserves. Rhys Williams told his mum what he wanted to happen at his funeral (Image: GoFundMe) “It’s crazy how someone can just come into your life and make such a massive difference.” Half of the summerhouse will be used up by the hot tub, with the other half providing a shaded space for Rhys to enjoy the outdoors. As well as protecting him from the sun, the structure will also give Rhys some privacy to relax in the water without being seen by neighbours. The teenager will refuse to leave the house on some days, feeling too self-conscious about people staring at him. Rhys Williams, 15, and mum Tanya, 37 (Image: GoFundMe) “Before the pandemic we used to go shopping and people would stare at him and look at him in disgust. “I even had one woman accuse me of pouring boiling water on him when he was a baby. “There are days where he doesn’t feel like he deserves to be in this world because of the way they look at him, it’s so wrong. “Sometimes he doesn’t want to go out into public because he knows what’s coming, but as the years go on and more people have got to know who he is and what he goes through, more people have been accepting and asking how he is and how he’s doing. “He’s so sociable, we can barely go out without someone asking after him which means so much – it helps him feel like he deserves to be here.” Visit the GoFundMe page for updates on Rhys’ fundraiser or to donate.

Source = PremierLeague-News.Com

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